Molly’s Fund Lupus Flares- Mollys Fund

Lupus Flares: Recognizing one, triggers, and prevention

What is a lupus flare and how do I recognize one?

Unpredictable and debilitating bouts with symptoms of the disease are known as flares.

At times lupus patients may have periods with few to no symptoms, commonly called remissions. Some physicians are uncomfortable with the term “remission” as lupus symptoms rarely disappear completely. They may, instead, choose to use the term “quiescence” (pronounced: kwee-ess-ence.) At other times the patient may have high disease activity which include unpredictable and debilitating bouts with symptoms of the disease.

Flares can be classified as mild, moderate, or severe. For example: A mild flare could perhaps be signaled by a lupus rash, moderate flares could include the rash, fatigue, and joint or muscle pain, and severe flares could potentially cause damage to the organs including fluid buildup around the heart or even kidney disease or failure (called lupus nephritis), which would require immediate medical attention. Back to top  

So how is a lupus flare recognized?

Most lupus patients will have symptoms of muscle and joint pain as well as fatigue regularly, so what makes a flare different? Here are some warning signs of a pending lupus flare:

It is important to report any of these with your medical caregiver as soon as possible so that they can quickly assess and treat any symptoms that could signal a flare. Keeping a daily symptom journal can be a helpful tool. Back to top  

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Learn About Christina Harvey she is a Lupus Earrior

Please give this a watch. As most of you know I was diagnosed with Lupus in Jan 2017 after almost losing a few of my toes. I had absolutely no idea what Lupus was. These people inspire me and give me hope. I can relate to just about everything they are saying. I teared up watching just knowing Im not alone. I hate disappointing people and lately I have had to cancel many event due to the pain, lack of energy or drs appointments. Its hard making people understand a disease you dont even understand yourself. I am really thinking about organizing a walk and/or some fundraisers for Lupus awareness and research. Would any of my family and friends be interested??? Tommy Wright Stephanie Wright Jennifer Wright Jessica Wright Frankie David Harvey Alexandra Wright-Phipps Maxine Poteet Joseph Hunt Nikki Wilkins Angela Brown Sarah Stine Mickie Knuckles Selena Johnson Larry Ferguson

With Lupus, Here Are 5 Ways to Stay Warm in Cool Weather


Feeling Like Fall: 5 Ways to Stay Warm with Lupus in Cool Weather

1. Never go to bed col

  Nothing worse  l than getting into a freezing cold bed at night .  You should consider looking into a heated mattress pad that has multiple heat settings.

2. Purchase clothing that can be layered

When building your outfit, consider sweat-wicking, stretchy, and comfortable fabrics

3. Warm up through liquids

When the temperatures drop, drinking warm liquids throughout the day and staying hydrated is one of the quickest ways for me to warm up.

4. Invest in some heat packs

If you need another way to stay warm over the next few months, I highly recommended adding heat packs to your list. A variety of brands and sizes can be found on Amazon

5. Protect yourself from germ

This isn’t necessarily a “warming” tip, but it is something I do consistently when the weather gets cooler to help protect myself from nasty germs. I make a shot-like drink that contains fresh crushed garlic, lemon juice, aloe vera juice, grated ginger, and honey. I have found that drinking this on a regular basis has really helped my already battered immune system stay in check. Sometimes I even add a dash of cayenne pepper for a little extra kick!


Vitamin D3 is Important in Autoimmune Disorders

There is also a considerable amount of research showing that vitamin D deficiency has been associated with several autoimmune diseases including multiple sclerosis, rheumatoid arthritis, type 1 diabetes mellitus, and systemic lupus erythematosus (SLE).
Vitamin D3 is Important in Autoimmune Disorders
Vitamin D has a well-established role in calcium metabolism and bone health, but recently there has been a great deal of research looking at the effect of vitamin D on other body tissues, especially immune cells. It is now known that there are vitamin D receptors (VDRs) located in the nuclei of all immune cells, including antigen-presenting cells, natural killer cells, and B and T lymphocytes. There is also a considerable amount of research showing that vitamin D deficiency has been associated with several autoimmune diseases including multiple sclerosis, rheumatoid arthritis, type 1 diabetes mellitus, and systemic lupus erythematosus (SLE).

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Turning my test into a testimony! Join me in saying kNOw to Lupus!

KNOW LUPUS Public Service Announcement – 60 Second Version



The word ‘lupus’ originated from the Latin word ‘wolf’. It’s attributed to a 19th century physician who used it to describe rashes or scarred irritations on the skin of his patients that looked like the bite of a wolf.

The wolf is considered as a ferocious animal which ravages just like lupus does. 

Lupus is life – threatening, unpredictable and can damage organs in the body.

Living with lupus is like living with a wolf in the inside. Do we allow the wolf (lupus) to ravage our bodies or find ways of taming it?

Taming the wolf involves taking measures to ensure we keep lupus under control.

Together we can make a difference by joining forces to educate lupus warriors and the public about Lupus.

You can also find us at Facebook at Lupus My Invisible Companion. And on Twitter at. LupusMICompanion @LupusCompanion


Molly’s Fund Lupus Hair Loss and Alopecia Explained – Molly’s Fund

Getting diagnosed with lupus is scary and upsetting enough without the added stress of potential hair loss. The physical ramifications of what systemic lupus erythematosus (SLE) can do to the body internally are indeed very scary. But the emotional toll of looking in the mirror and seeing a dramatic change in our external appearance is just one more thing that can make living with lupus more difficult. So, can lupus cause hair loss? The simple answer is, unfortunately, yes. Because lupus causes widespread inflammation throughout the body, many times it can also involve your skin-which is the largest organ of the body. Inflammation of the skin can result in rashes or even hair loss occurring most often on the face and scalp. The medical term for hair loss is alopecia. It is usually described as hair noticeably thinning orHair loss problem with hairbrush falling out in clumps or in patches. Although a few people with lupus will lose clumps of hair, the disease can also cause gradual thinning of the hair on your scalp. It is also possible to notice loss of hair of the eyelashes, eyebrows, beard or body. There are two main types of alopecia: scarring and non-scarring. Scarring means that the hair follicles have been destroyed by inflammation (and thus there is no chance of hair re-growth). Discoid lupus is one major cause of scarring alopecia. However, if caught early enough (before scarring takes place), it is possible to see hair regrowth. Non-scarring means that the hair follicles are still present and hair regrowth is possible. Hair loss can be one of the first signs or symptoms of lupus. Approximately half of lupus patients will experience at least some form of lupus hair loss and alopecia. This often occurs at the beginning of the disease but can also appear along with certain medications and treatments that may be prescribed to manage more serious lupus symptoms. Back to top  

To read more please go to Lupus Hair Loss and Alopecia Explained